Thursday, 22 January 2009

22nd January, 2009

As you can see I have updated this weblog from the original www.anps.co.uk/Duncan site. So although all the dates say that the posts were made on 22nd Jan 2009, they relate to posts from September 2008 to the present.

Duncan
14th January, 2009

A visit to the surgeon to discuss my various herniations resulted in being seen first by a very nice, and new to me, registrar who knew all about me as he had studied my case history and had helped to write up the case notes with the previous registrar who had been hands on, so to speak at the time. My concern is whether or not the hole in the gauze cum false skin I have on my abdomen, through which the bowel is protruding or herniating, will get any bigger. I am assured that it will. Can anything be done about this ? Or should we be doing anything ? Or indeed should we leave it alone ? Yes, probably not and probably are the answers. The problem is that going back into the abdomen is fraught with difficulty. It all stems from the fact that according to the consultant and registrar I survived an un-survivable accident and that the surgery carried out on me was by and large trauma based, stop-gap work. This was not exactly how it was put but that was the essence of it. Isn't it always the case that you are told things in the consulting room which disappear from the mind the minute you come out ? I should know by now to concentrate more carefully on what is being said, or perhaps to take in a recorder. Mind you it is hard to absorb things when you are lying down. Anyway, the tissue inside me is still as hard as concrete. The consultant had hoped that it might have softened but it has not. Being so hard it is practically impossible to work with. Then there is the question of entering the abdomen without puncturing the bowel, almost certainly impossible to achieve, so one would be facing fistulas. Then there is the question of separating or peeling the bowel away from the layer of skin over the abdomen. Tricky. Putting a mesh over the herniation at the flare entry point was seen as possible as the skin is not attached to the bowel, although entry to this area would have to come from the front of the abdomen with all the attendant problems I have just described. So let's do nothing, see what happens and take things as they come. In the meantime a CT scan which has been booked will tell us more about the concrete tissue issue and the bowel. On the plus side small herniations tend to trap bowel and cause blockages which is problematic. Larger herniations do not. And I am in the larger camp. Then there is the question of the state of the skin which was grafted onto my abdomen. There is the possibility that this can break down in certain circumstances and that is less than handy. The consultant said "We will definitely be seeing you at some stage." Nothing will happen without them having as clear a picture of what is going on inside as possible and without the operation being absolutely imperative. Understanding that the hernia at the front of my abdomen will get bigger, as I suspected it would, is fine, I just hope it takes its time about it. I left the consulting room with the words “enjoy your life” ringing in my ears. Now this could have been meant in a “have a nice day” manner or it could have been more sinister. I am wondering if I should have a look at life and treat it in a rather more relaxed fashion than I do. After hospital I was hell bent on returning to normal life, to the rat race and the rut and providing for my family and picking up the cudgels of all the challenges I had been facing prior to the accident. To this end all the grand ideas about how we would change our lives, live in Italy or Cyprus, that we had nurtured while in hospital to try and see us through to the other side were thrown out of the window. Perhaps we should re-visit them ? Sally has always been of the view that “you can't take it with you”. I have always countered with “but you wouldn't want it to run out before you went”. So, perhaps a change is on the cards ? Fistulas are a pain and could mean a lengthy stay in hospital, I suspect but as and when any operation happens I will be fit, strong and well able to handle the tribulations unlike last time when I was half dead. We'll play it by ear then and take it one day at a time, said he slipping into the world of the cliche but I am sure that any operation will be some time off, well I hope so anyway.

Incidently Katie will be joining the world of the abbreviation when she starts with the Paramedics at the end of this month, beginning with ABC of course, Airway, Breathing, Circulation. There will be RTA's, DOA's, OD's CPR's, ECG's, Pulmofarcs, fibs, de-fibs and trachys to name but a few, or rather not to name but to initialise and acronymise...and then of course there is DEAD which stands for, er, well dead, actually.

Duncan
9th January, 2009

Happy New Year. And let's hope this year is an improvement on last year.

We've all been beetling away as ever.

Katie is about to start her Paramedic training. Yippee. At last, a career ! She gained her C1 licence to drive a 7 ton truck or some such, a couple of weeks ago. Us oldies automatically have a C1 licence but anyone taking their driving test after 1997 doesn't get it. It's just the government's way of getting extra money out of us - these stealth taxes - and creating jobs, nightmare. Then when Katie had passed the DVLA C1 test, she had to pass the NHS ambulance driving test which she did. She will make an excellent Paramedic and she's certainly going to experience far more harsh reality than I would ever care to see.

Ellie is now in her second term flexi-boarding at Queen Anne's. As far as Ellie is concerned the jury is still out on the matter. As far as we are concerned she's got seven years.

I have made inroads into the WI and am starting to give talks at the various meetings. I have 3 federation auditions in the next two months which should open up another number of meetings and talks opportunities, then there are my talks for the Sailing Clubs which are going down well. I am also moving into the after dinner speaker and motivational talks business. I spoke at the Draeger (they make ventilators) annual sales conference and there are other corporate engagements lined up. I hope to do something with Hollister (stoma supplies) but I am not sure what.

I am writing...and writing...and writing. There are the books and articles `Just a Sharp Scratch', Sailing Material, articles for Tidings the CA magazine and the Margaret McEwen story and International Help For Children and of course the talks which now run to Just a Sharp Scratch; Boating Capers - bringing Dorothy Lee back from Brittany to the Hamble; The Life of a Voiceover; Handy Hints - boating tips, featuring the value of the spring and close quarter boat handling and the Margaret McEwen story...watch this space, much happening.

We have now given Wexham Park £54,586 and there will be a little more to come once we have got some Gift Aid on a couple of cheques that came in late.

I went to ITU the other day to record two of the alarm sounds that were so much a part of my life. I must be the only person with a Draeger Evita alarm sound for my voicemail ring tone and an ITU computer alarm sound for my message ring tone. We recorded the Draeger in one of the isolation rooms. We then wanted to record the alarm sound of the computer that monitors all the functions. This is very emotive for me. So we were shown to a bed space run by one of my favourite nurses and where the partient was on a ventilator. We were told he was asleep. How did they know, he looked extremely out of it to me. The nurse flicked a few switches which made the alarm go off. I was slightly concerned in case anything should happen and said, "Please don't kill him on our account.". Naturally the nurse wasn't doing anything that might affect her patient and I was just trying to get in a cheap crack. Worked though, Alan who was with me laughed. I don't think anyone else heard. Sally of course thinks I am mad. Well I probably am.

Duncan
17th December

I arrived back after the last person had left. Clinic over. Finished. It had been a good day, Sally said. Plenty of banter. Lot's of laughs. Some good news and some not so good. Someone had brought a delicious carrot cake, another had brought a card, newspaper cuttings, articles of interest. Sally had laid on the usual array of Bridge Rolls, egg mayonnaise, tuna, ham. Why are Bridge Rolls so addictive ? There were some left over. I dug into them.
Later that night Sally and I talked about the clinic, what it meant to the people who had come, what it meant to us. Three times a year they come, more or less the same faces. Some of course pass on and they are replaced by new people. And some don't come any more because they don't need to. Mrs. Davey who was down for cataracts found that her sight improved and no longer needs any help. Some come because not to come might mean a recurrence of the problem. Marina doesn't get migraines if she comes. She does if she doesn't. So she comes. Richard should have been here today but he was back in hospital. A couple of others couldn't make it because they were too ill.
We had come across Michael Chapman when my great friend Christopher was at the end of his fight with cancer of the oesophagus. The cancer had gone to his liver by then. I found out then what `liverish' meant, first hand. Another friend had heard about a father and son team who treated a great many people and who had apparently had successes. An example of a woman with a tumour was cited. Once the tumour had been found the lady was told by the doctors to come back in a month for chemo therapy. She decided that there might be another way of tackling the problem and went to see George Chapman, a well known psychic surgeon who took on the persona of William Lang an opthalmic surgeon from the early 20th century. George's son Michael was a faith healer who worked with his father and took on the persona of William's son, Basil. The lady went to George on a regular basis for the month and then returned to her doctor. When he inspected her he was unable to find the tumour and concluded that it had disappeared, healed itself..
This was the sort of miracle that we required for Christopher so being too ill for the five hour drive into the depths of Wales where the Chapmans were based, a friend organised a helicopter airlift for Christopher. I saw Christopher when he returned that night and he seemed different. It didn't work for him however and he died a fortnight later but the connection with the Chapmans was made. So when, a year later my mother in law, Theresa, was diagnosed with cancer of the colon and she was launched upon the standard course of NHS treatment - radio therapy, chemo therapy and surgery - I suggested to her that the `alternative' Chapman option might be worth looking at. Taken in conjunction with conventional treatment it could do no harm. It is a brave person who when diagnosed with cancer by the NHS will turn their back on the system and head off for alternative therapies. Desperation of course fuels the need to seek alternatives and I certainly know that Chistopher became involved in all sorts of what I would describe as `quackery' which will have done nothing more than increase his vitamin C level at best, I would imagine. Some of the concoctions, weeds, and grasses are truly disgusting to taste. I know I tried them all. And Theresa tried them, too. And the NHS system being what it is a patient is quite often swept off their feet and racing down the burn poison and slash path before they know what's hit them. All well intentioned of course.
So Theresa went to see George Chapman who was in his mid 80's at the time. George rarely left Wales but Michael travelled the country holding clinics. And Theresa caught up with Michael at a number of these. Theresa and her daughter Sally would come back and tell me about these. Clinics are held in private houses. There is no fee to see Michael. And a session with Michael which should be 15 minutes is always longer. As far as Michael is concerned he will spend as long as it takes which means the clinic always runs late but of course no one minds. We put up a sign which just says '£25'. If you can afford it, then a contribtution to Michael of £25 for your session would be gratefully receivd. If you can't afford it, then it is perfectly acceptable to pay nothing, or to pay that which you can afford. Two Indian ladies came to our house once and at the end handed Sally £10. That is all they could afford. They had taken a taxi to come to our house and had to rush back before their husbands found out what they had been up to and where their spending money for the day had gone ! £10 was gratefully received. Nobody abuses the system.
I have always been fairly sceptical about faith healing and have felt that it is probably rife with fraudsters which is why I wholly subscribe to the Chapmans. George died a couple of years ago but Michael carries on the good work. Michael and George went out of their way to help Theresa and there was no financial advantage for them to do this. And the comfort, warmth and support that Michael gave meant so much to her. He also came to see me in hospital when I had my accident. And over the years I have had healing from Michael. Now I am not for one minute going to tell you what I think is going on between a God or a spirit and Michael and the patient because I have no idea. I think of it as Michael inspiring confidence within us and our own bodies healing themselves. It doesn't really matter what is actually going on, if people get better or feel better or are able to handle their illnesses better then this is a benefit. And the wonderful thing about hosting a clinic three times a year is the social nature of the event. Everyone has come to see Michael of course but they've also come to see Sally catch up with everyone's news. Patients often stay for hours and hours chatting to one another and making it a real day out. And we have all become great friends. And that friendship and support that everyone gives and is given must be beneficial in helping them to come to terms with their illness or indeed in helping them to overcome it.
I took a call from a patient the other day to say that their son wouldn't be coming to the clinic on Sunday. I thanked them for calling and passed this on to Sally. She told me that this was the mother of the tragic baby who'd been born with a tumour. His parents had brought him to the last clinic and it was all terribly sad. Now, the baby had died. That makes it all very personal. There was another young boy, a very brave boy who had something dreadfully wrong with him. I never found out what but I notice that he doesn't come any more. I hope that doesn't mean what I think it does.
I greeted the first patient to arrive on Sunday and she said to me “Did you stay here overnight ?”
“Yes, I did”, I replied. “I often stay here overnight. I live here”
“Oh, I thought you were Michael,” she said “You look so, alike”. Actually I look nothing like Michael. He has a beard and longer hair than me and he always wears a suit and tie, whereas I have an open neck shirt and casual trousers. I didn't say anything of this to the lady but I was relieved to discover that she had come to see Michael about her eyes which were failing her.
Sally already has a practically full list of appointments for Michael's next visit and we look forward to seeing all these lovely people next time. And Michael of course.

Duncan
2nd December

There is much to tell and I have been woefully lax in not updating the site.

I have just been conversing with a brilliant chap called Bob Cooper who has written a very funny book called On The Nose. It's the ideal Christmas present for anyone so buy a copy at www.amazon.co.uk On The Nose by Bob Cooper.

I am in the process of updating my voiceover website at www.duncanwells.com and I have now started giving after dinner speeches and motivational talks. I am speaking at the Draeger (Ventilators) Sales Conference among other engagements and am looking at a tie up with Hollister (Stoma Products). I am writing for Tidings (The Colostomy Association magazine) and will probably do something for them at their Annual meeting.

I have a reasonably positive approach to what has happened to me and it seems that I might be able to encourage others to feel better about themselves or to come to terms with things. It's no good denying what has happened to me and as one has to live with it one might as well do something for others. So for funny articles on how to handle being an ostomate, read Tidings Magazine.

We just completed a 7 week course for a couple of shore based day skippers and had great fun. There will be courses for Day Skipper and Yachtmaster shore based running from January 2009 at our centre at BCUC in Chalfont St. Giles. A visit to www.westviewsailing.co.uk will reveal all.

The book is coming along. Just a Sharp Scratch is the provisional title. This is also the title of the motivational talks which are tailored to each event depending upon whether the organisers want a sailing angle or a medical angle. I am also now on the Women's Institute talks circuit and have bookings for the new year. The talks and the book are funny. It is a pretty heavy subject but judging from the audience reaction and the laughter, I get the balance right between serious fact and funny. There is a good deal of observational detail in the book about the interaction between patient and system. After all 9 months in hospital puts a major strain on both sides. Doctors have asked me to write the book in order to get the picture from the patient's point of view. I hope I am able to do this objectively. Certainly waiting until some time has passed and I have become more or less fully rehabilitated is a good idea. Too close to the event and I think I would have been too subjective.

Toodle Pip !

Duncan
4th October

I felt rather proud to have been awarded "Father of the year" by 'She who must etc...' the other day...

It was only when I looked at her face that I realised, this accolade came with large dollops of sarcasm. It concerned a child, naturally. Junior daughter Ellie to be precise and her new school, Queen Anne's Caversham. To say that Ellie is boarding is not entirely accurate. She is flexi-boarding which seems to be a matter of running two abodes and getting parents to drive hundreds of miles every week. I am looking forward to a more permanent arrangement where Caversham features more prominently. That is not to say that I am not delighted to see Ellie on every occasion when she returns to the house, which is approximately every 48 hours but I am sure that my welcome will become the more generous the longer the period of separation. Of course it is remarks like this that will have earned me my award.

Nonetheless Ellie is getting along well. It is a big move to go from a local school to the secondary school and to be away from home.

Much has happened and I have been lax in the reporting of it.

We are about to close the Wexham Park Ventilator account and hand the remaining money to the hospital. They will have received £54,000 in total. Of course if you want to help us make this a round figure, like £55,000 then please divvy up now. It would be a shame for anyone who wanted to donate to miss the boat because we had closed the account.

There will be more.

Oh yes, anyone fancy sponsoring me for the OSTAR ? Just a thought.

Duncan